I started learning a little (tiny tiny fraction) about the complexities of oncology recently as a patient. I only have access to a small percentage of the available information and am looking very specifically at one stage of one cancer and still the information is immense and unwieldy, while my own lack of knowledge is significant I can see that it would be a lot to sift through when treatment outside of the standard, approved treatment is required for one patient.
I am curious if A1 involvement could expand the possibilities for studies, increasing length and geography. With contraindications to the approved chemotherapy I asked my oncologist about another option with some promising results in studies as a radiotherapy sensitiser. As it’s not yet an approved treatment here, without a current study I can be enrolled in if I chose this option there is no advice on dosage available from my medical team and the data will not be collected in a meaningful way. Could A1 potentially mean in rarer cases a more worldwide approach to participation in studies? All of your questions above and more would need to be addressed if this were to be feasible.
Fortunately I do have options with a good naturopath supporting me, but it would be helpful to be part of a study.
I started learning a little (tiny tiny fraction) about the complexities of oncology recently as a patient. I only have access to a small percentage of the available information and am looking very specifically at one stage of one cancer and still the information is immense and unwieldy, while my own lack of knowledge is significant I can see that it would be a lot to sift through when treatment outside of the standard, approved treatment is required for one patient.
I am curious if A1 involvement could expand the possibilities for studies, increasing length and geography. With contraindications to the approved chemotherapy I asked my oncologist about another option with some promising results in studies as a radiotherapy sensitiser. As it’s not yet an approved treatment here, without a current study I can be enrolled in if I chose this option there is no advice on dosage available from my medical team and the data will not be collected in a meaningful way. Could A1 potentially mean in rarer cases a more worldwide approach to participation in studies? All of your questions above and more would need to be addressed if this were to be feasible.
Fortunately I do have options with a good naturopath supporting me, but it would be helpful to be part of a study.
Waiting for MedBeds for Jim!